Spencer
Age 4
Children’s Hospital Foundation
Dwarfism
Although small in stature, Spencer has a giant passion for life. While Spencer battles achondroplasia (dwarfism) his parents say, “He doesn’t know he’s a little person. He thinks he is the boss. He has the personality of a giant.”
It’s hard to tell when Spencer is feeling weak because he is always wearing a big smile. Despite undergoing several MRI’s, CAT scans, biopsies, and blood tests, he shares his love with everyone he meets, be it doctors, family members or even strangers.
Suffering from hearing loss, Spencer communicates with sign language and his trademark grin. He cooperates with doctors during visits and even wipes his own finger with an alcohol swab for his bihourly blood sugar tests. Additionally, he deals with reflux, scoliosis and asthma, but maintains a hugely positive attitude and maturity well beyond his years.
He is an outgoing, people-magnet and loves drawing people in with his charm.
Wednesday, April 25, 2012
Children's Miracle Network Hospitals Champions
Champions is a Children's Miracle Network
Hospitals program that brings attention to the important work being done at its
170 children’s hospitals. It does this by honoring 54 remarkable kids who have
faced severe medical challenges, and helping them tell their stories.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
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